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C
Clinical Outcome Assessment (COA)
C
Clinical Study
C
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C
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C
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C
Clinical Trials Information System (CTIS)
C
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C
Clinician-reported outcome (ClinRO)
C
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C
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C
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D
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D
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D
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Data monitoring committee (DMC)
Data protection authority
D
Data protection by Default
D
Data protection by Design
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Term of the Day

Natural History Study

A natural history study is a preplanned intended to track the course of the disease. Its purpose is to identify demographic, genetic, environmental, and other variables (e.g., treatment modalities, concomitant medications) that correlate with the disease’s development and outcomes. Natural history studies are likely to include patients receiving the current standard of care and/or emergent care, which may alter some manifestations of the disease.

R

Right to erasure

The right to erasure is also known as ‘the right to be forgotten’. Individuals can make a request for erasure verbally or in writing. The right is not absolute and only applies in certain circumstances.

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